HIV Research Network (HIVRN)

  • Principal Investigator(s): Ken Mayer
  • Study Contact: Ken Mayer, DrPH, 617 927 6087, kmayer@fenwayhealth.org
  • Description of Subjects: HIV-infected patients aged 18 and older receiving medical care at Fenway Health. (HIVRN includes pediatric data, but Fenway Health only submits adult patient data)
    • HIV+
    • HIV/HCV Co-infected
  • Location (Domestic vs. International): Fenway has participants from all over New England
  • Enrollment Period: 2001-present
  • Enrollment Goal: Presently, Fenway has over 3,000 participants. Enrollment is ongoing.
  • Key Exclusion and Inclusion Criteria: Inclusion criteria: HIV-infected, at least 1 in-person medical visit, and at least 1 CD4 count in the observation period. Fenway only includes patients 18yrs and older.
  • Available Biological Specimens: Blood, serum, or plasma, Peripheral Blood Mononuclear Cells
  • How to Request AccessEmail the Fenway study coordinator
  • Available Data Description: Longitudinal laboratory data (including CD4 counts, viral loads), demographics, risk factors, vitals, phenotypes, vaccinations, primary care procedures, Diagnoses (ADI, MH, SA, Co-morbidities), medications, limited inpatient, outpatient, and ER visits
  • Optional Additional Comments: Fenway is providing data to HIVRN, a national consortium of HIV care providers, whose goal is to gather and analyze data on accessibility, quality, utilization, safety, and costs of health care services provided to persons with HIV disease to inform health policy and for research. Fenway submits data annually on our HIV-infected patients. Data submitted covers a broad range of topics including, but not limited to: demographics, ARV history, ART and current medications, OI prophylaxis, infectious disease labs, vaccinations, AIDS defining illnesses, mental health and substance abuse diagnoses, and inpatient and outpatient visits. HIVRN is sponsored by AHRQ and Johns Hopkins University School of Medicine is the lead site.