Fenway Cohort affiliated with (North American- AIDS Cohort Collaboration on Research and Design (NA-ACCORD))

  • Principal Investigator(s): Kenneth Mayer, MD
  • Study Contact: Chris Grasso, MPH, 617-927-6018, cgrasso@fenwayhealth.org
  • Description of Subjects: Fenway Health medical patients who have had at least 2 HIV primary care visits at Fenway in a 12 month period and are 18 years or older
  • Location (Domestic vs. International): Fenway has participants from all over the New England geographic area. Fenway's facilities are located throughout Boston, MA.
  • Enrollment Period: 1997 to present (ongoing)
  • Enrollment Goal: Presently, Fenway has over 2,600 participants. Enrollment is ongoing.
  • Key Exclusion and Inclusion Criteria: Inclusion criteria: HIV-infected persons who are 18 years or older and have had at least 2 HIV primary care visits at Fenway in a 12 month period; and vital statistics, gender, year of birth, and first visit must be known . Exclusions: transgender, tran
  • Available Biological Specimens: 
    • Blood, serum, or plasma
    • Peripheral Blood Mononuclear Cells
    • Other (Cell Pellets)
  • How to Request AccessEmail study contact person directly
  • Available Data Description: Demographics, risk factor, death data and longitudinal lab values (including CD4 and viral load), diagnosis, medication, and encounters
  • Optional Additional Comments: Fenway was accepted into the North American AIDS Cohort Collaboration on Research and Design (NA-ACCORD) database research project in 2011. NA-ACCORD is part of the International epidemiologic Databases to Evaluate AIDS (IeDEA) which began in 2006. Comprised of 25 collaborating cohorts, NA-ACCORD is designed to be widely representative of HIV care in the United States and Canada. NA-ACCORD, with Johns Hopkins University as the lead, is one of seven regional HIV collaborations supported by the NIH as part of the International Epidemiologic Databases to Evaluate of AIDS (IeDEA).